Dakota Fisher-Vance

Board Member

Dakota received her B.A. in biology from Bryn Mawr College in May 2011 and a Familial Adenomatous Polyposis (F.A.P.) diagnosis two months later. Between her F.A.P. and desmoid tumor diagnoses, statistically speaking, she's four in a million. Patient advocacy fills the void left by her cancerous colon and her job title. As Senior Patient Advocacy Manager at BioCryst Pharmaceuticals, she ensures that the voices of rare patients and the non-profits that serve them are heard and supported. She's the co-founder of Young Adult Cancer Connection which hosts Cancervention, Philadelphia's first young adult cancer conference, and the creator of FAPulousTV, the first YouTube Channel dedicated to discussing F.A.P and was featured in The Colon Club's 2020 issue of "On the Rise".